by Linda Rodriguez
I have a new best friend. Well, not
really new. We've been very close before, and then as the press of
daily life and work took over, we started to see less and less of
each other. You know the way these things happen—not because of
anything either of us did but the world got between us. I'm sure you
have friends like that. It's not that you aren't still friends, but
just that you don't have the chance to see each other that much
anymore. Then, one of you goes through some kind of crisis, and
suddenly the other is there with support and whatever help you need,
and you're reminded of how much this neglected friendship means to
you and swear you'll never let the world and work get in the way of
it again.
When I had to leave my fulfilling
career in higher education for medical reasons, it was devastating.
At first, the doctors couldn't figure out what was physically
debilitating me, so couldn't really give me much help. Eventually,
they diagnosed me with lupus and fibromyalgia and prescribed steroids
and DMARDS (disease-modifying drugs) to protect my organs from
further damage and help begin to control the overwhelming fatigue,
joint and muscle pain, and muscle weakness. (Fun lupus fact of the
day: As with most autoimmune diseases, lupus has no medicines
developed specifically for it, but uses organ-transplant-rejection
drugs, cancer chemotherapy drugs, and other similar powerful and
expensive remedies.)
Determined to become active again and
work at the writing career I'd originally aimed at before being
derailed by family needs into higher education administration, I
began to use a kitchen timer to help me return from the helpless
mists of illness. I would set it for fifteen minutes and walk around
the house, then go lie down to recover, set it for another fifteen
minutes and sit down to try to write, then go lie down to recover,
set it again and do a simple household chore that didn't involve a
lot of exertion, then go lie down, on and on ad infinitum throughout
the day. My rheumatologist was impressed with the recovery I made
with this simple routine and told me he wished he could get his other
patients to do the same. Over months and months of this, I slowly
built up a reasonably normal life again. I was actually able to
function and to build a new career.
As I grew stronger and busier, I used
my trusty kitchen timer less and less. It was nothing my friend had
done, of course. Life just caused us to drift apart. Until another
disaster stuck—breast cancer. After three surgeries in two months,
culminating in a radical mastectomy, I found myself weak, fatigued,
in pain, and brain-fogged from all the medications and treatments.
Suddenly, my dear friend showed her loyalty and support again and
helped me rebuild my strength and life.
We had been once again drifting
apart when my last chemotherapy treatment suddenly included a new
additional infusion, and the combination tipped me over into a
massive lupus flare, even once the terrible chemo side effects
settled down somewhat. Only this time, I couldn't take the medications
that help suppress the flare because of interactions with the
chemotherapy and other cancer meds which are still circulating in my
body. Once again, I've been knocked flat, and my loyal,
too-often-taken-for-granted friend, the kitchen timer, has come to my
rescue.
We were in the middle of downsizing a
big, old house in which my family and I have lived for 42 years. I've
put off the realtor's walkthrough for another month. I'm also in the
midst of writing another book, which has a publishing deadline. I
can't really put that off. So I rise in the morning, eat breakfast,
take what meds I can and wait for them to go to work. Then I set a
timer and wash a few dishes (no dishwasher in this old house). I
can't stand in one place for long without pain and weakness in leg
muscles, but the warm water helps me get my hands to function. When
the timer goes off, I go sit down to try to write a few words,
setting the timer because sitting for very long causes problems with
my knees and hips and writing on the computer or by hand for very
long causes cramps and pain in my hands, arms, and shoulders. When
the timer goes off, I move to the heavily-cushioned recliner to
elevate my legs and rest my arms, setting the timer again. When it
goes off next time, I pack items for giveaway in boxes or fill trash
bags and recycling bins from cupboards, closets, two attics, full
basement, and garage. (Truth be told, I haven't made it to the garage
yet and probably won't for a while because there's so much to deal
with in the house itself.)
Once again, my dear pal has turned up
when I needed her most, proving to be a most loyal and devoted
friend. With her invaluable help, I feel sure I will do what I must
and still recover my strength. I've come to realize that the problem
with our relationship lies with me. I forget that I need to pace
myself. I forget that I need the help of my friend, the timer. I get
busy and self-involved and forget that I need this friendship. I have
vowed that I'll not make that mistake again.
Do you have friendships that have
drifted apart for similar reasons? Is there a friend in your life
that you seldom see right now, but you know you could count on that
friend totally in a time of crisis?
Your determination to control your life is inspiring. With the aid of your "best friend" and your own positive attitude, I bet you'll overcome these difficulties.
ReplyDeleteI had to retire from a career I wasn't really ready to leave, also for health reasons, and while I have not had the continuing problems you have, I know it was difficult for me.
Thanks for sharing, Linda. I'm reminded of the preamble to the 1863 American Mineworkers Asscoiatioin, which is something like: "Step by step the the longest march can be won."
ReplyDelete~ Jim
Thank you, Linda. Your blog is very inspiring. I worked with a woman who had a 15-minute theory. When she faced having to do something she didn't feel like doing or had been putting off, she would commit 15 minutes to it, no more. If she stopped at 15 minutes, she didn't feel guilty. But more often than not, once she got into something, she would spend more than 15 minutes on it. She said that just getting started was the hardest part. But by telling herself she only needed to do it for 15 minutes, she was more inclined to get into it.
ReplyDeleteI am impressed by your determination to not let your illness defeat you. Your post also reminded me that I put off getting our house in order to sell one day because I expect always to have the strength and time to do it. I am starting today to do what I need to do. Maybe I'll ask my timer to help. Thank you.
ReplyDeleteAll I need is fifteen minutes...my new mantra. Maybe with a cookie reward.
ReplyDeleteSafe travels to DC.
Linda, I think that's a wonderful way to use your timer. I've been trying to limit my time sitting at my computer down to no more than a half hour at a time. I've passed that mark now, so I'm going to send this now and get up to clean my two bird cages and the litter boxes, even though I'd rather stay on the computer.
ReplyDeleteAs for your question, the best friend I could really count on died six years ago. I have other friends, too, but none like she was. Of course, I have my kids and siblings, too.
KM, it's tough when your health derails your career, isn't it? In my case, it turned into a blessing. I'd always wanted to write, but the financial requirements of supporting my family sent me into higher ed admin, and I might have stayed there forever if the lupus hadn't kicked me out of it.
ReplyDeleteJim, that's an inspiring slogan for those of us who fear an authoritarian government right now, as well. Thank you.
Grace, I think your friend is really on to something.
ReplyDeleteMary, I hear you. I knew my house needed to be purged of all that stuff collected by everyone over the years, but I always thought I'd be healthy and strong enough to do it in a big push. I wish now I'd worked on it all along, but when I look back on how busy I was, I don't really see how I could have done much differently. My advice is to do it now, if you possibly can, and you'll be grateful later.
Margaret, your idea of the cookie reward is great! I think I'll add that in. :-)
ReplyDeleteGloria, I'm so sorry you lost your dear friend. I'm fortunate enough to still have long-time friends like that. We may get busy and not see each other much for a year or two, but if one of us has an emergency, the other is there for whatever's needed.
Clever and resourceful -- and determined! I admire you! Your doctor clearly does as well. I'm reminded of my mother's doctor asking about her broken toe, pleased to hear she'd followed instructions to continue regular activity so it would heal. He said those who become inactive from the pain never get better. AARP Mag. article mentioned warm dish water easing arthritis also.
ReplyDeleteI used to have a timer on the computer to tell me to step away every half hour. The app had issues, but I need to find a new reminder. A timer I set myself might be the answer.
I've been trying to establish an exercise habit now that allergies are keeping me away from the Y. I think I've found the right one, tai chi while watching the sunset . . . they pair well. <3
I've lost touch with work friends and some cyber-friends, but real friends and books remain.
Mary, your mother's doctor is right. My rheumatologist who first diagnosed my lupus told me when he retired a couple of years ago that he thought when he made that diagnosis that i would be in a wheelchair in ten years, and ten years later he was so pleased to see how active I was still.
ReplyDeleteThe thing about a kitchen timer is that I can take it wherever I go around the house--and it's LOUD.